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Huntington’s Disease is a progressive genetic neurological condition, resulting in involuntary movements, changes in mood, judgement and cognition and impaired physical function.
Clinical guidelines regarding physical therapy for Huntington’s Disease recommend care plans to include education for individuals with the condition; as well as families and care-givers (1).
Physiotherapists often utilize patient education as a therapy modality when treating clients with Huntington’s Disease. Currently, Super Rehab Sydney does not have an education resource for their physiotherapists to utilize in facilitating client education.
This project aims to develop a resource that:
A pre-survey will be conducted to identify areas clients and their family/carers are interested in improving their knowledge about regarding Huntington’s Disease. This will assist in the design of the resource to be client orientated.
A post-survey to gain feedback on what was beneficial and what could be improved for future for the education resource.
Once the resource has been evaluated and refined, the resource will be made available for physiotherapists to provide as a print-out or emailed PDF for the education component of their therapy.
A similar methodology may be applied for future quality improvement projects for other common conditions often presented at Super Rehab Sydney; for example, Multiple Sclerosis, Parkinson’s Disease, Falls Prevention.
If you are a person with Huntington's Disease or if you are a family member, please click the link to the pre-survey below, which will be open for one month (closes 14th June 2021). The pre-survey is approximately five minutes long.
Trisha Purvis (Super Rehab Physiotherapist)
Phone: 0478 770 335
(1) Quinn, L., Kegelmeyer, D., Kloos, A., Rao, A. K., Busse, M., & Fritz, N. E. (2020). Clinical recommendations to guide physical therapy practice for Huntington disease. Neurology, 94(5), 217-228.